I finally got a call from the neurologist at Mayo on the two follow up items. The mass in my left sinus is completely benign, and the med levels in my blood sample can afford a pretty good upgrade in dose.
I see this as bad news, good news. I was kind of hoping that the sinus thing would be a smoking gun, as that is a heck of a lot more treatable than breaking the back of my skull open, finding the Trigeminal nerve, hopefully finding the cause of its agitation, and hopefully being able to treat it.
The good news is that I have a lot of runway with the meds. Unfortunately, it has been a really tough couple of weeks with regard to the pain, even despite upping my dose, and that worries me. I'm chalking it up to stressful times at work, harried business travel, and lack of sleep. Hopefully things will calm down at work and my head return to normal. I'll keep you posted.
In the mean time, I have an appointment with a neurosurgeon in a couple of weeks to establish a file and discuss options, and I intend on keeping that appointment.
For the first time since this thing hit, I'm scared.
But I have good support, the best doctors in the world, and a lot of faith. Optimism is winning. I hope that continues.
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hang in there. You are in my prayers. JVC
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